Research

Funded in research over the past 40 years.

$0

Dollars

Volunteers

Combined time contributed each year across all volunteers to programs and advocacy.

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Total Hours Per Year

Advocacy

Advocated for comprehensive care and equitable access to treatment.

0

% Commitment

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Community Growth

Highlighting personal experiences can be a powerful way to advocate for change. Sharing dynamic visuals or compelling stories – such as a day in the life of a thalassemia patient and their family – can highlight the key challenges they face and inspire positive changes in treatment and care.

By showcasing these lived experiences, we can:

  • Highlight Challenges
  • Build Empathy
  • Drive Action

We can connect with patients or guardians, have meaningful conversations about improving the lives of those with thalassemia.

Interested Applicants – Complete the form

Patient Stories