Research

Funded in research over the past 40 years.

$0

Dollars

Volunteers

Combined time contributed each year across all volunteers to programs and advocacy.

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Total Hours Per Year

Advocacy

Advocated for comprehensive care and equitable access to treatment.

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% Commitment

What’s New

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  • 35th Annual Valentine’s Gala

    35th Annual Valentine’s Gala

    Our 35th Annual Valentine’s Dinner and Dance will be held on Saturday, February 21, 2026 at Montecassino Woodbridge.

Events Calendar

See what’s coming up — click any highlighted day for details.

Community Growth

Highlighting personal experiences can be a powerful way to advocate for change. Sharing dynamic visuals or compelling stories – such as a day in the life of a thalassemia patient and their family – can highlight the key challenges they face and inspire positive changes in treatment and care.

By showcasing these lived experiences, we can:

  • Highlight Challenges
  • Build Empathy
  • Drive Action

We can connect with patients or guardians, have meaningful conversations about improving the lives of those with thalassemia.

Interested Applicants – Complete the form

Patient Stories