Research
Funded in research over the past 40 years.
$0
Dollars
Volunteers
Combined time contributed each year across all volunteers to programs and advocacy.
0
Total Hours Per Year
Advocacy
Advocated for comprehensive care and equitable access to treatment.
0
% Commitment
What’s New
Stay updated with our latest news, events, and research developments
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35th Annual Valentine’s Gala
Our 35th Annual Valentine’s Dinner and Dance will be held on Saturday, February 21, 2026 at Montecassino Woodbridge.
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Giving Tuesday is coming — together, we give hope
Giving Tuesday is coming — together, we give hope
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Access to Casgevy in Canada getting closer
In July 2025, the negotiation process between Vertex and pCPA became active. This is one…
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2025 Newsletter & Updates
08/18/2025 – Let’s Make A Difference: Upcoming Events & Initiatives 08/08/2025 – Register For Our 27th Annual…
Events Calendar
See what’s coming up — click any highlighted day for details.
Community Growth
Highlighting personal experiences can be a powerful way to advocate for change. Sharing dynamic visuals or compelling stories – such as a day in the life of a thalassemia patient and their family – can highlight the key challenges they face and inspire positive changes in treatment and care.
By showcasing these lived experiences, we can:
- Highlight Challenges
- Build Empathy
- Drive Action
We can connect with patients or guardians, have meaningful conversations about improving the lives of those with thalassemia.
Interested Applicants – Complete the form
Patient Stories
Our Impact in Photos
Capturing moments from our events, activities, and community impact
Want to see more photos from our events and activities?


