Thal Survey 2022

To all thalassemia patients receiving care in Canada:

We want to hear about your experiences receiving care and living with thalassemia in order to help us effectively advocate for the needs of thalassemia patients. Your experiences can help us better understand the challenges and barriers thalassemia patients face and therefore, help to establish focused research and advocacy campaigns.

The survey is brief and will only take about 10-15 minutes to complete. Please click the link listed below to go to the survey website (or copy and paste the link into your Internet browser) to begin the survey.

Survey link: 

Your participation in the survey is completely voluntary and all of your responses will be kept confidential. No personally identifiable information will be associated with your responses to any reports of these data.

Your voice is important and necessary as we continue our mission to bridge the gap between what individuals with thalassemia experience and how our healthcare providers may interpret that experience.

Thank you so very much for your continued support in the fight against thalassemia!!!