CORD is Canada’s national network for organizations representing all those with rare disorders and provides a strong common voice to advocate for health policy.

TIF is an international non-profit, non governmental organization dedicated to the promotion of awareness about and the control of thalassemia worldwide.

Canadian Blood Services is a not-for-profit, charitable organization whose sole mission is to manage the blood and blood products supply for Canadians.

NRBDO is a coalition of national patient groups, formed to share the best practices in health care delivery for people with rare blood disorders.